31st January 2016
Northern Ireland Chest Heart & Stroke
Heart Conditions

With-a-conditon-Heart

Being told you have a long–term heart condition can be devastating.

People cope as best they can.  But if they do not have the necessary information, skills or confidence it can be hard to manage their condition. It can be difficult to make well–informed decisions about their health, treatment or even daily life – let alone make plans for the future.People living with long–term heart conditions need information, care and support from others. If you live with a long–term heart condition, knowledge, skills and the right services are what put you in the driving seat in deciding what’s right for managing your condition and, most importantly, your life.

To find out more click the links below 

How Your Heart Works Angina Heart Attack
Cardiac Arrest Heart Failure Heart Rhythms
Pacemakers Congenital Heart Disease Heart Tests
Heart Attack Stories

Please note that the information on this website is not a substitute for the advice your doctors or other health care professionals may give you based on their knowledge of your condition.

If you are diagnosed with a Heart Condition remember it is never too late to adopt a healthier lifestyle. You can reduce or eliminate those risk factors that are within your control. You should:

How your heart works

Your heart is a muscular pump about the size of your clenched fist and it circulates blood to every part of the body. The average heart beats 100,000 times a day

The heart has a left and right side, and these two sides of the heart have separate functions. The right side of the heart collects blood low in oxygen from the body and pumps it to the lungs, where it picks up oxygen and releases carbon dioxide.

The left side of the heart then collects blood rich in oxygen coming from the lungs and pumps it to the body via the aorta and a series of arteries. Once the oxygen is delivered to the cells in your body, the blood flows back to the right side of the heart through a series of veins.

Heart

Your heart is a muscle that requires both blood and oxygen to work properly. The right and left coronary arteries carry blood to the heart muscle to ensure that it gets enough oxygen and other nutrients.

Angina

Angina is the pain or discomfort experienced when the heart muscle doesn’t get as much oxygen as it needs due to the build up of fatty deposits (plaque) on the walls of the arteries. It is a common warning sign of coronary heart disease.

Symptoms of angina can include:

  • Pressure or a feeling of tightness in the chest
  • This pain can also be felt at the same time in the neck, jaw and left arm, or both arms
  • Sometimes it extends to the upper back and shoulders
  • Pain may be accompanied by breathlessness and sweating

As well as during exertion, angina can occur during times of stress or strong emotions like anger or excitement, because these emotions can cause your heart rate to increase. Some people also report that angina develops more easily in cold temperatures and windy weather or after large meals.If you have noticed a pain or pressure in your chest when you have been exerting yourself, you should visit your GP as soon as possible. The doctor will ask you a number of questions about the pain, such as:

  • What brings on the pain or discomfort and what relieves it?
  • What does the pain or discomfort feel like (for example, heaviness or tightness)?
  • How often does it occur?

Your GP will also listen to your heart and chest and check your blood pressure. If your doctor suspects that you have angina, you may be referred to the hospital for more heart tests such as:

  • An ECG (Electrocardiogram) ECG (Electrocardiogram)
  • An Exercise Stress Test
  • An Echocardiogram
  • An Angiogram

Managing Your Angina

Managing angina may involve lifestyle changes, medication, medical procedures, and cardiac rehabilitation.

Lifestyle changes and medicines may be the only treatments needed if your symptoms are mild and aren’t getting worse. After several episodes, you will know the level of activity, stress, or other factors that bring on your angina. This knowledge enables you to take steps to prevent or lessen the severity of episodes.

When lifestyle changes and medicines don’t control angina, you may need medical procedures and/or cardiac rehabilitation.

Heart Attack

Coronary heart disease is usually caused by the build–up of fatty deposits (plaque) on the walls of the coronary arteries which narrows them.

A heart attack, also known as myocardial infarction, is when part of the heart muscle dies because it has been starved of oxygen by a blockage in a coronary artery.

Most of these occur when the fatty deposits in the coronary artery rupture and trigger the formation of a blood clot. A blockage may also result from a spasm or sudden narrowing of a coronary artery.

The symptoms of a heart attack vary from person to person but can include:

STOP2-for-web

STOP is an acronym for:

S – Something’s not right – symptoms can start slowly

T – Tightness or pain in the chest, pain in the arm, neck or jaw

O – Other symptoms such as shortness of breath, nausea or sweating

P – Phone 999 immediately – the ambulance crew will do an ECG.

The last letter of STOP is very important – Phone 999 immediately. There’s no time to waste when chest pain strikes. Every minute that passes can mean the difference between life and death. Our advice is to call 999 rather than driving the patient to hospital, because the ambulance crew can provide treatment at the scene

Unlike angina, pain associated with a heart attack is not usually relieved by rest or nitrate sprays, such as GTN (Glyceryl Trinitrate).

Click here to find out more about women’s heart attack symptoms

Click here to find out more about men’s heart attack symptoms

Heart Attack Diagnosis and Treatment

A heart attack is usually confirmed with heart tests such as an electrocardiogram (ECG) and blood tests. The ECG may be done by the ambulance crew. Treatments to try to restore blood flow to the heart are started as soon as possible.

Initial treatment will include pain relief, oxygen and a combination of medications to thin the blood, widen the blood vessels or slow down the heartbeat.

During a hospital stay, ECGs and blood tests are carried out. Other tests may also be conducted to assess how well the heart is pumping, whether blood flow has been restored and to help decide on the best form of treatment. Click here to find out more information on the types of tests which may be carried out.

Treatment

Medications – After a heart attack, you may need to take a variety of medicines. The aim of administering medication during a heart attack, and just after, is to restore blood flow, save heart tissue and prevent complications. The purpose of subsequent medication is to promote healing of your heart and prevent another heart attack.

Primary Percutaneous Coronary Intervention (PPCI) – This procedure improves blood flow to the heart by using a special balloon to open a blocked artery from the inside at the point at which it narrows. Often a special expandable metal tube (stent) is inserted and left in place to keep the artery open.  

PPCI treatment is now available 24/7 across Northern Ireland. When the ambulance crew arrives, they will carry out an ECG on the patient which they transmit to the specialist nurse teams at the RVH or Altnagelvin, which are Northern Ireland’s Heart Attack Centres (HACs). This highly specialist triage team then decide if the type of heart attack the patient is experiencing needs PPCI at one of the HACs or if they can be taken to their local A&E. If they are suitable for PPCI, the ambulance crew will take the patient directly to the Cath lab for treatment, bypassing A&E. Their chance of survival are increased and their chances of reoccurrence are reduced. This is why it is important to call 999 immediately – the sooner this process starts, the better chance the patient has of a good recovery.

Coronary artery bypass graft (CABG) – Increasingly, blockages are being opened up with PCI but there are still cases where surgery is needed. In CABG, healthy arteries or veins taken from other areas in the body are used to bypass narrowed coronary arteries.

Recovery from a heart attack

Recovery after a heart attack will start slowly. For the first few days you will need bed rest but gradually you will become more active, based on advice from your doctor. Structured cardiac rehabilitation programmes start in hospital. Cardiac rehabilitation is a programme to help people manage their heart condition and improve their health. Cardiac rehabilitation has two parts: Exercise training – Teaches you how to exercise safely, strengthen muscles, and improve stamina. Education – This part of the programme develops understanding about heart conditions and ways to reduce the risk of future heart problems.  

It can also help to meet other people who have had similar experiences. Both Northern Ireland Chest Heart and Stroke and the Cardiac Support Network have a number of support groups across Northern Ireland, more details of which can be found by clicking here. 

Cardiac Arrest

Cardiac arrest is when the heart goes into spasms and stops beating. This can happen for a number of reasons, for example, during a heart attack a complication called ventricular arrhythmia can cause the heart to go into spasm and then to stop beating. It can also be caused by a congenital heart defect or by an external event such as electrocution, choking or trauma.

Signs and symptoms suggesting a person has gone into cardiac arrest include:

  • they appear not to be breathing
  • they are not moving
  • they do not respond to any stimulation, such as being touched or spoken to

If you think somebody has gone into cardiac arrest:

  • phone 999
  • use a defibrillator, if available
  • do CPR

When you phone 999 the operator will be able to tell you what to do. If you are unable to restart the person’s heart, CPR will at least keep the blood, containing oxygen, flowing around the patient’s body until an ambulance arrives. 

Heart Failure

Heart failure means that your heart is not able to pump blood in the way it should. The most common cause of heart failure is a heart attack, which causes damage to the muscle of the heart. Common causes of chronic (long–term) heart failure include:

  • Coronary heart disease
  • High blood pressure
  • Cardiomyopathy (disease of the heart muscle)
  • An irregular heartbeat
  • Disease of the heart valves
  • Thyroid gland disease
  • Alcohol or substance abuse

 All these conditions put extra work on the heart over a long period of time. The heart initially tries to cope with the extra workload by getting bigger, developing more muscle or beating faster in an attempt to keep up with demand. But eventually it cannot cope and when it starts to fail symptoms will become evident. Not everyone experiences the same symptoms, but you might feel short of breath when you are physically active (for some people this happens even when they are at rest). You may feel very tired and sometimes those affected can also have swollen feet and ankles. If you have had a serious heart attack the symptoms may develop suddenly but they can also develop over weeks, months or longer.

Diagnosis of Heart Failure

If you are feeling very tired or breathless or have noticed your ankles and feet being swollen, you should visit your GP. The doctor will ask you a number of questions about your symptoms and medical history. Your GP will also listen to your heart and chest and check your blood pressure. If your doctor suspects that you have heart failure, you may be referred to hospital for more heart tests such as:

  • An ECG (Electrocardiogram) ECG (Electrocardiogram)
  • An Echocardiogram Echocardiogram
  • A chest x–ray
  • Blood tests

Managing your heart failure

Managing heart failure may involve lifestyle changes, medication or medical procedures. It is important that you monitor your symptoms and learn to recognise changes in their pattern. Changes in symptoms may be a sign that the heart failure is worsening, so you should see your GP. For example, fluid retention leads to weight gain and can be an indication of accelerating heart failure or that your medications need to be adjusted. Try to weigh yourself at the same time each morning. 

When lifestyle changes and medicines don’t control your heart failure, you may need a medical procedure. There are some forms of surgery and some devices which can be implanted in the body that can help some people with heart failure. However, medical interventions are not suitable for everyone and will be recommended only after tests.

Heart Rhythms

Your heart has a natural pacemaker called the sinus node, which sends electrical impulses through special fibres in the heart muscle to stimulate it to beat. These electrical impulses usually keep it in a regular ‘sinus’ rhythm. Your heart will normally beat between 60 and 100 times a minute when you are resting. Each heartbeat can be shown on a heart tracing, called an electrocardiogram or ECG. At one time or another, most people have felt their heart race or skip a beat. These occasional changes can be brought on by strong emotions, exercise, caffeine or alcohol and they are usually not a cause for alarm. An arrhythmia is a change in the rhythm of the heart. The heart rate can become abnormally rapid, slow and/or irregular. Most arrhythmia are harmless, but some can be serious. When the rate is too slow, too fast or irregular, the heart may not be able to pump enough blood around the body. When this occurs it needs to be investigated and treated. You may not notice any symptoms of an arrhythmia. If you do have any, they will depend on the type of arrhythmia you have and how severe it is. Symptoms may include:

  • Palpitations or a fluttering in your chest
  • Dizziness
  • Fainting or collapsing
  • Breathlessness
  • Chest pain 

Diagnosis of Arrhythmia

If you have noticed repeated palpitations or a fluttering in your chest you should visit your GP. The doctor will ask a number of questions about your symptoms, such as what they feel like, when and how often they occur.Your GP will also listen to your heart and feel your pulse. If he or she suspects that you have an arrhythmia you may be referred to hospital for further tests, such as:

  • An ECG (Electrocardiogram)
  • An Exercise Stress Test
  • Ambulatory Monitoring

If the palpitations are very persistent and not responding well to medication, electrophysiological studies (EPS) may be needed to investigate their cause fully.

Pacemakers

An artificial pacemaker is an electronic device placed under the chest skin to help the heart maintain a regular rhythm. The pacemaker system includes a pulse generator and electrical leads that connect the pulse generator to the heart. Pulse generator – this small metal container contains a long life battery and the electrical circuitry that monitors your underlying heart rhythm. It regulates the rate of electrical pulses sent to your heart. Leads – these flexible, insulated wires deliver the electrical impulses to your heart. Most pacemakers work only when they are needed or upon demand. This means that the pacemaker sends out an impulse only when it senses that the heart has missed a beat or is beating too slowly. If the pacemaker senses no natural beat, it will pace continuously.

Implantation

The pacemaker is implanted during a minor surgical procedure performed under local anaesthetic and light sedation. The leads are placed through a vein beneath the collarbone and positioned in the heart under x–ray. Tests are carried out to ensure the leads are well connected to the heart muscle. The leads are then connected to the pulse generator, which is placed beneath the skin just below the collarbone. Usually only a small bump in the skin is seen at the site where the pacemaker has been implanted. The procedure usually takes less than an hour.

After Implantation

Recovery from the procedure is rapid although for several weeks there will be restrictions on heavy lifting and extreme motion of the arm on the side where the pacemaker is implanted. You may experience some discomfort and bruising around your pacemaker site for a few days but this can be eased with pain–relieving medication. Before you go home a nurse will advise you on how to care for the pacemaker site, including keeping it dry for one week. Most patients return to normal activities within a few days. You may need time to get used to the pacemaker in general. You may be aware of the presence of the pulse generator but you will soon become used to it. After the pacemaker is implanted, regular follow–ups will be scheduled. At each visit the pacemaker will be tested and the life of the battery monitored. If necessary the pacemaker programme will be adjusted to your individual needs.

Congenital Heart Disease

Congenital heart disease is the most commonly occurring serious congenital abnormality affecting children. It is the name given to heart conditions that babies are born with. It happens all over the world, in families from all walks of life.   

The heart is made up of four main sections called chambers, with four valves controlling how the blood flows between these chambers and around the body. Congenital heart disease is when any of these chambers or valves has not developed properly when the baby was in the womb.  

Worldwide, there were 223,000 deaths caused by the condition in 2010. In Northern Ireland alone, over 200 babies are born with congenital heart disease every single year. Of these, 50 will require cardiac surgery in the first year of life for severe lesions and more will require interventional cardiac catheterisation and other treatments.

Thankfully, due to advances in surgery and other treatments, most children do very well and have an excellent quality of life. But some survivors of congenital heart disease can continue to have problems through to adulthood. An increasing number of young adults require further surgical treatment and life–long follow–up care.

In most cases, we don’t know why babies are born with congenital heart disease.

We know that some genetic and environmental factors can be involved but the majority of cases remain unexplained.

Congenital heart disease – the facts:

  • Congenital heart disease is the most commonly occurring serious congenital abnormality affecting children.
  • Congenital heart disease is one of the most common birth defects and affects 8–10 of every 1,000 babies.
  • In Northern Ireland, over 200 babies a year are born with congenital heart disease.

The Baby Hearts Study is a pioneering research project – funded by Northern Ireland Chest Heart & Stroke (NICHS) – which aims to pinpoint the causes of congenital heart disease. 

Heart Tests

Heart tests give doctors important information about your heart and this information can be used to determine the best treatment for your condition. Heart tests include:

  • Electrocardiogram (ECG)
  • Exercise Stress Test
  • Ambulatory Monitoring
  • Echocardiogram (ECHO)
  • Cardiac Catheterisation

Electrocardiogram

An electrocardiogram (ECG) is a quick, simple, painless test that measures the electrical activity and rhythm of your heart. The ECG will show a variety of lines and waves which will be analysed to see if there is reduced blood flow to the heart muscle or if you have had any recent damage to the heart. The ECG will also show how fast your heart is beating and any irregularities in its rhythm. Sometimes your doctor will compare your current ECG to previous ones. This helps to determine if changes to your electrocardiogram are recent. Since the ECG has limitations, your doctor may refer you on for further tests.

Exercise Stress Test

For many people who have significant narrowing of the arteries supplying the heart muscle, the electrocardiogram (ECG) recording made at rest can be normal. This is why an ECG recording is often made when the patient is exercising. Activity is more likely to reveal the problem. During an exercise stress test you will walk on a treadmill while your ECG and blood pressure are monitored and recorded. The doctor will be looking at the ECG to see if any changes indicate coronary heart disease. The doctor will also be interested in how much exercise you are able to do and whether you experience chest pain or breathlessness.

Ambulatory Monitoring

Holter monitor  – this records the electrical activity of your heart while you do your usual activities. It is a small, portable ECG machine worn at home over a 24–48 hour period. Many symptoms like palpitations or fluttering in your chest become noticeable only during exercise, eating, stress, or even sleeping. A continuous recording is more likely to detect any abnormal heartbeats or rhythms that occur during these activities.

Patient Activated Event Recorder – if your palpitations or fluttering sensations are less frequent, a patient activated event recorder may be more appropriate. This is a device which records the ECG if you push the button when you feel your symptoms.

Echocardiogram

An echocardiogram (echo) is a test in which ultrasound is used to examine the heart. The echo produces an image of the heart on a screen. It shows the structures of your heart including the 4 chambers and the valves. It assesses how well your heart is pumping, the presence of fluid around it, problems with your heart valves and information about the pressures within your heart.

A Transoesophageal Echocardiogram (TOE) is a special type of echocardiogram used when a closer and more defined image of the heart valves is needed. Pictures of your heart are taken by inserting a probe into your gullet (oesophagus). These pictures are clearer because the oesophagus is close to your heart and the chest wall is not in the way. The back of your throat will be sprayed with some numbing solution and although you will be awake during the procedure, you will be given some medication to make you feel relaxed and sleepy.

Cardiac Catheterisation

Cardiac catheterisation (angiogram) is a procedure in which a small plastic tube is placed within a large artery in your groin and fed to the arteries in your heart. A special contrast agent (dye) will then be injected through the catheter and a series of x–rays will be taken. This technique is used to take pictures of the coronary arteries and the pumping action of the heart. It provides the most detailed and accurate information on the condition of your coronary arteries. Local anaesthetic is given in your groin or wrist before insertion of the catheter. You may feel pressure as the tube is inserted, as well as a warm sensation throughout your body when the dye is injected. The procedure generally lasts for less than 30 minutes. Afterwards you will be asked to lie still for 3–4 hours to allow the puncture site in the groin to heal (this is only if the groin is used). 

Electrophysiological Studies (EPS)

If you have abnormal heart rhythms (arrhythmia) or palpitations you may be referred for this test. As with an angiogram, fine tubes (electrode catheters) are fed into a vein and/ or artery, usually in the groin. They are then gently moved into the heart, where they stimulate the heart and your heart’s electrical activity is recorded. This helps the doctors determine why you have the abnormal rhythm and decide on the best form of treatment.

Heart Attack Stories

Heart attacks can present in many different ways. Here some people share their stories of what happened to them. Click on the person’s name to read their story.

Geoff’s Story

Geoff Vogan from Portadown always kept himself fit, going to the gym 2–3 times a week, and taking up cycling. He had a healthy diet and was not overweight. So the possibility of a heart attack was the last thing on his mind.  On the 19th May 2012, the morning of his heart attack, Geoff [...]

Kevin’s Story

In the middle of July 2014 Kevin Carlin from Derry started experiencing the worst heartburn he’d ever had. It lasted from Wednesday through to Friday and was so severe he was bent double at his desk and colleagues were commenting that he looked a little grey. Looking back Kevin reckons he was probably having a [...]

Joyce’s Story

Joyce McBride, who lives in Ballymoney and was an auxiliary nurse in the Causeway Area Hospital in Coleraine, had a heart attack in 2002. The previous year, Joyce had costochondritis, which is a painful inflammation of the cartilage in the chest. So when the chest pains returned she assumed it was a reoccurrence of the […]

Seamus’s Story

Seamus O’Connor’s message is “Never self–diagnose”. Self–diagnosing his severe heart condition as indigestion almost cost him his life. Seamus’s symptoms started in 2000. He had severe indigestion, or so he thought, for weeks, even months. He used to take his grandson to school. Almost every day,after about 100 yards in the car, he’d be in […]

Gerry’s Story

Gerard Clancy has just returned from his first holiday in 15 years. Looking tanned and relaxed, reminiscing about the countries he visited in his Navy days, he does not look like a man whose heart is monitored 24/7. But 14 years ago, Gerard’s life changed completely. He had just driven home with his wife and […]

Sean’s Story

Sean McLaughlin, 45, from Downpatrick almost died of a heart attack in November 2014, while taking part in a fundraising boxing event in Ardglass. The father–of–three started to feel unwell at the end of the second round. Suddenly he collapsed in the ring. First–aiders from the Order of Malta rushed to help him. An off […]

Amelia’s Story

This story was written in June 2015. Amelia sadly passed away in September 2016, and is dearly missed. Her family want us to continue to share her story to help make others aware of the symptoms of a heart attack so they can catch it quickly. Amelia Thompson’s family remember the weekend she had her first heart attack, [...]

Tatty’s Story

Patrick “Tatty” McMullan from Jonesborough in south Armagh died of a heart attack in November 2012. He had chest pain while helping a friend lay concrete. He was 59. His son Ciaran said: “He told his friend Gerry that he was having pain. It must have been bad for him to mention it, because he […]

Edmond’s Story

Doreen Irvine lost her husband Edmond in October 2014. Doreen and their 5 children still find it hard to believe that he is gone. “We were married for 31 years and had watched our children grow up and make us grandparents. “Edmond was an active farmer and although he had had a stroke 22 years [...]

Cathy’s Story

  Well Check helped reveal silent heart attack Cathy McMullan does not look like a woman who would be at risk of heart disease. And she certainly does not look like a woman who had a silent heart attack a few short months ago, but that is exactly what doctors believe has happened. Cathy works […]

Other Heart Stories

Click on the names below to read more heart stories.

Billy McClintock’s Story

I am a partner in a firm of accountants and work under a certain amount of pressure. I was approaching my 61st birthday and although I was feeling my age I had had reasonably good health up to that point. I think I had been off work ill about five days in the previous 25 […]

Irwin’s Story

Irwin Campbell (74) lives in Limavady. Shortly after his retirement 14 years ago, he developed heart problems. “I was having dinner,” he says, “when the fork dropped out of my hand. I’d lost all the strength in my left arm. The next morning I went to comb my hair and just couldn’t raise the hand […]

Patricia’s Story

Mother of two, Patricia Young, knows that without her husband, she wouldn’t be alive today. 3 years ago, Patricia suffered a sudden cardiac arrest. She was clinically dead for 6.5 minutes and had it not been for her husband performing CPR on her until the paramedics arrived, she would have passed away. Patricia only knows [...]

Eileen’s Story

Chest, heart and stroke health conditions are often linked, which is why NICHS works with all three. This story is about a lady who has had all three, plus other long term health conditions. It’s also a story about someone who is amazing and whose positive attitude despite all she’s been through is an inspiration. […]

A congenital heart disease is the name given to a heart condition you are born with. 200 babies are born in Northern Ireland each year with a congenital heart disease. Click on the names below to read the stories below.

Baby Joe’s Story

On the 16th of August 2013, Kerri and William Degnan from Larne took the most frightening journey of their lives. Their two–day–old baby, Joe, who was born with a congenital heart defect, was travelling in an air ambulance to Birmingham for life–saving surgery while they followed on a scheduled flight. Joe had a condition known [...]

Grace’s Story

AMAZING GRACE Imagine having a child with a condition so rare that a syndrome is named after her.  Angela and Anthony Spooner’s precious newborn daughter Grace arrived with several deformities of the heart. Not just that, but she also suffers from partial deafness, sight problems, cognitive difficulties, a twisted bowel and multiple spleens. Grace, who’s [...]

Sophie’s Story

Sophie is 3 – three and a half actually. She lives in Dundonald and is an absolute livewire. Her family joke that when she had her surgery the doctors put an extra battery in her. Unfortunately Sophie’s congenital heart disease wasn’t able to be detected before her birth so when a heart murmur was discovered, the […]

Matthew’s Story

13 year old Matthew from Banbridge has needed repeated surgery as he has grown older. His congenital heart disease was discovered during his 21 week scan and he was fitted with his pacemaker the day he was born.At the end of July of this year, he had his third pacemaker fitted. His parents Carol and […]

Chloe’s Story

“I JUST ASK THE QUESTION: WHAT DID I DO WRONG?” Chloe Fisher from Kilkeel is a bright 14 year–old who has full marks for attendance at school and a love of acting. But when she was born she had eight separate faults with her heart and lungs. Chloe had Fallot’s Tetralogy, a congenital heart condition [...]

Karen and Robin’s Story

Karen and Robin from Lisbane, just outside Comber, say they have been on an “emotional rollercoaster” after doctors broke the news in October that their unborn baby has congenital heart disease. The couple found out after a 20–week scan that their baby, due in March, has a condition called a double inlet left ventricle. Babies […]

Tom and Anne’s Story

“WE HAD TWO BABIES WITH HEART PROBLEMS. ONLY ONE SURVIVED.” When newlyweds Tom and Anne Johnston decided to start a family in the 1950s, they could not have foreseen the tragedies that lay ahead. Their first baby died before birth from a brain condition. Their second, Kay, had the congenital heart complaint Fallot’s Tetralogy.  And […]

Stephen’s Story

In the other stories we talk a lot about the effects on the immediate family but the wider family circle can be affected too. Stephen McBrien comes from a large family and was very close to his cousin Orla. In fact, he says she was like a sister to him and he loved spending time [...]

Priscilla’s Story

“FUNDRAISING KEEPS ME CLOSER TO MY LOST BOY” Like anyone, William Walker from Coleraine wasn’t looking forward to the prospect of open–heart surgery. At the age of four he had been diagnosed with a heart condition that narrowed the organ’s aortic valve and had been present since birth. To repair the fault, surgeons had to […]